Fly Little Butterfly

I look up at the sky,
so blue, so bright,
so full of air, so full of life,
wind blows with such might,

A beautiful butterfly,
starts to take flight,
emerged from its hidden place,
filling the world with grace,

Fly little butterfly,
to the heavens, up high,
in shades of purple,
with such great purpose,

Soar with the wind,
your beauty will never dim,
we’ll remember in kind,
our hearts forever grim,

But we will carry your dreams,
to find the cure for all,
united with all our means,
we will never let you fall,

So fly little butterfly,
to the heavens, up high,
you did your best,
and we’ll do the rest.

Written by: Maria Espino
Dedicated to: Claire Wineland

Claire’s Place Foundation

Change the lives of so many that are fighting to just breathe for another day. Claire’s Place helps families with every day expenses like car payments, electric bills, rent, etc. while their loved ones are in the hospital due to Cystic Fibrosis.

Live a Life Worth Living

“I think if there’s anything that anyone gets out of my story and what I’m trying to say is that you don’t have to get rid of the pain and the suffering in order to live lives that we’re really proud of. We don’t need to erase it. We need to find a way to actually make something of it and relate to it. And I think that applies to being sick and also applies to life in general for people.” – Claire Wineland

To say that our lives are blessed by the presence of angels is to believe in life after death, to believe in a higher power.  Some of those angels are unseen, felt but unseen.  And some of those angels are born into extraordinary lives.  Claire Wineland is one of those angels.

She, like many of us, was born with a genetic lung disease called Cystic Fibrosis.  She was told she was not going to live past the age of 5, then 10, then 15, then 20.  As advances in the care and treatment of Cystic Fibrosis made it more feasible for her lungs to hold on,  her life expectancy would move up the scale.  At age 13, she was scheduled for a routine operation, one of many that us CF’ers have to endure, when she caught a blood infection that landed her in a medically induced coma and forced to be on an oscillator because the respirator failed for her.  Only 1% of patients put on an oscillator ever make it out of one, and no one with cystic fibrosis had ever made it out prior to her.
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